Current news
The new issue of the ALS Journal is now available online
Congratulations to the Multidisciplinary Team from Beaumont Hospital who held a very informative MND Study Day on 23-01/2010
Presentations from the day can be viewed below.
Prof. Orla Hardiman Clinical Management of the ALS/MND
Ms. Geraldine Foley OT in the management of ALS/MND
Multidisciplinary Care and Quality of life
Management of MND in hospital
Deirdre Murray
Rosin Maloney Physiotherapy Management of ALS/MND
Eleanor Leahy Respiratory Physiotherapy
Presentations from the 20th ALS/MND Symposium.
Oral Presentations
Geraldine Foley Occupational Therapy and Physiotherapy at an Irish ALS Centre: An Audit to Review Care Links with Community Care Services
Bernie Corr End-of-life decisions and advance care directives in ALS/MND: evidence-based guidelines for best practice in Ireland
Julie Phukan To be provided
Poster Presentations
Bernie Corr End-of-Life Decisions and Advance Care Directives in Motor Neurone Disease: Evidence based guidelines for best practice
Marwa Elamin The Impact of The Awaji-shima Criteria on Yield from Concentric Needle EMG Studies In Patient with Suspected ALS
Nora Jordan Methodological difficulties when adhering to the emerging consensus criteria for assessment of cognitive and behavioural components of Amyotrophic Lateral Sclerosis (ALS) in practice.
Catherine Lynch Validating population-based resisters for als: How accurate is death certification?
Peter Bede Neuroimaging biomarkers in Amyotrophic Lateral Sclerosis
Russell Mcloughlan To be provided
Update from the 20th ALS/MND Symposium - Including photos from Berlin
Congratulations goes out to Prof. Orla Hardiman and her research team for recently being accepted into the NEALS (NORTHEAST Amyotrophic Lateral Sclerosis) consortium. NEALS is based in the USA and among the many benefits of being accepted into this group is the consideration for NEALS clinical trial participation as new trials become active. The Irish MND research group is delighted to be associated with NEALS.
As a member of the International Alliance of ALS/MND Associations; a representative from the IMNDRF will be attending annual Meeting of the International Alliance of ALS/MND Associations in Berlin on the 5th and 6th of Dec. During the meeting ALS/MND Associations from around the world share initiatives and develop strategies for fighting ALS/MND. Attendance is encouraged and people living with ALS/MND are welcomed as observer/participants in the meeting. Registration forms can be obtained here.
Interruption of Italian lithium carbonate trial in ALS due to lack of efficacy and serious concerns about toxicity.
The IMNDRF would like to commend Jimmy Magee, who told the nation about his personnal experience with MND while promoting the importance of research. You can view his interview on the Late Late Show by clicking here.
The IMNDRF is affiliated with the new Irish Stem Cell Foundation. Check out The Irish Stem Cell patient Initiative Group for up to date information regarding stem cell cure research.
Promoting awareness of MND research is central to our mission. Why not join us in our quest by supporting our facebook page and become an IMNDRF fan
The Puck Warriors 10km Jingle Run in Killorglin, Co. Kerry, have kindly agreed to donate all funds to our charity.
You can register for the event at:
http://www.runireland.com/forms/puck-warriors...-10km-jingle-run-09
and/or you can set up an additional fundraising page via mycharity.ie
https://www.mycharity.ie/charity_Admin_Details_Events.php
T-shirts are available but bring your own santa hat!
We hope to see you there...
- 61st Annual Meeting of the American Academy of Neurology, April 25 - May 2, 2009
Prof. Orla Hardiman is one of two researchers to receive the American Academy Neurology’s Sheila Essey Award–An Award for ALS Research.
A presentation was made during the 2009 Annual Meeting which took place in Seattle.
Many congratulations Prof. Hardiman!
Photos can be viewed here
Representations from the IMNDRF included:
Platform presentation by Prof. Orla Hardiman
Poster Presentation by Dr. Julie Phukan
Poster Presentation by David Lynch
- MND Research Group Annual Report 2008
- The Irish Instute of Clincial Neuroscience -2008 Registrar Prize
During the 2008 Registrar Prize, hosted by the Irish Institute of Clinical Neuroscience, it was reported that there is a very high standard of research being conducted in Ireland. The over all research prize went to Dr. Julie Phukan for her presentation 'A Population Based Survey of Cognitive Decline in Amyotrophic Lateral Sclerosis'
Well done Julie!
- The ALS Journal website have excellent review articles free for download. This section will be updated frequently to guide our visitors to the most recent available information.
The Irish Motor Neurone Research Team present their work at a national and international level. All work is available for viewing.
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