Blog entries

2012 Lundbeck Neuroscience Bursary

Catherine Lynch — Fri, 13 Jan 2012 21:22:49 +0100

Many congrats goes out to Dr Parameswaran Iyer (MND Research Registrar) who was awarded the 2012 Lundbeck Neuroscience Bursary in support of his project titled 'The exploration of biomarkers into MND and MND/FTD'.
Parames presented his project to a panel of experts - overcoming stiff competition to secure the €20,000 award.
http://www.lundbeck.ie/

Brain Bank

Catherine Lynch — Thu, 12 Jan 2012 16:33:26 +0100

The launch of the Dublin Brain Bank took place on Wednesday, October 22nd, 2008. Professor Michael Farrell, Consultant Neuropathologist in Beaumont Hospital, is responsible for the day to day running of the Dublin Brain Bank. To quote Professor Farrell: "By providing researchers and clinicians with much needed brain tissue, the network offers potential for improvements in diagnosis and treatment of patients. It will also play a significant role in informing and supporting those wishinRead More...

The 2011 Forbes Norris Award

Catherine Lynch — Wed, 30 Nov 2011 00:18:43 +0100

Many congrats goes out to our very own Prof. Orla Hardiman who was awarded The 2011 Forbes Norris Award - from the 22nd International Alliance of ALS/MND
Associations - for compassion and love of humanity in the study and management of MND. Prof Hardiman was recognised for her scientific contributions to our understanding of MND.

International Ask the Experts Session

Catherine Lynch — Fri, 18 Nov 2011 05:44:15 +0100

Each year a panel of experts are invited to inform the audience about scientific advancements relevant to MND. The session is aimed at people living with MND and their famillies. This year a live stream is available to allow people who are unable to travel to participate.

You may post questions for the experts in advance orRead More...

22nd International Symposium in ALS/MND (2011)

Catherine Lynch — Sat, 12 Nov 2011 09:32:02 +0100

The International Symposium on ALS/MND occurs yearly and brings together experts in the field of MND research and Health and Social Care Professionals.

Representative in from the Irish MND Research Group will be in attendance to report on the activities of the group.

http://www.mndassociation.org/research/for_researchers/international_symposium/

2011 Registrar's Prize in Neuroscience

Catherine Lynch — Fri, 11 Nov 2011 20:00:31 +0100

The IICN's Registrar's Prize in Neuroscience, took place today' Friday, November 11th, 2011 at the Radisson Blu St. Helen's Hotel, Stillorgan Road, Dublin.
RMN would like to congrat Dr. Susan Byrne who won the overall prize for her engaging presentation -
"A new gene in ALS: clinical phenotype for ALS patients who are gene positive."
Well done Susan!

http://www.iicn.ie/news/programme_for_registrars_prize_in_neuroscience_published.13.1141.html

Charity Race Night

Catherine Lynch — Thu, 27 Oct 2011 12:46:59 +0100

Dundrum Lions Club are hosting a race night on November 3rd in The Goat, Dundrum. Part of the proceeds from the night will support RMN. All are welcome to attend.
Poster

Current Health Research

Catherine Lynch — Wed, 26 Oct 2011 15:01:36 +0100

The HRB and Beaumont hospital have produced a set of posters and accompanying leaflets which outline some of the ways in which health research is impacting on patient care.

Leaflet and posters are available for download via the HRB website.
http://www.hrb.ie/research-strategy-funding/achievements-and-impacts/beaumont-posters/motor-neuron-disease/

Researchers discovered a new gene which is now known to be the cause of rare familial forms of ...

Catherine Lynch — Thu, 22 Sep 2011 09:47:30 +0100

Breaking News: Researchers discovered a new gene which is now known to be the cause of rare familial forms of MND/ALS. Going forward the identification of Chromosome 9p21- which we now know is linked to ALS-FTD forms of ALS will have a significant impact on our understanding of the molecular mechanisms underlying typical ALS.

Papers are free for download via Cell Symposia : http://www.cell.com/

RTE's Colm Murray talks about living with MND

Catherine Lynch — Tue, 14 Jun 2011 13:30:17 +0100

RTE's Colm Murray talks about living with MND and his enrollment into the Empower Study.
http://www.irishtimes.com/newspaper/health/2011/0614/1224298857441.html

Prof Hardiman talks about the EMPOWER TRIAL on national radio 09/06/2011

Catherine Lynch — Thu, 09 Jun 2011 18:35:51 +0100

Prof. Orla Hardiman's gave an interview on the Breakfast Show -Newstalk. The podcast can be located via the link below - part II - 15.45 minutes into section.
http://media.newstalk.ie/listenback/49/thursday/1/popup

Phase III study in MND/ALS from Biogen Idec

Catherine Lynch — Wed, 08 Jun 2011 15:57:26 +0100

The 100th worldwide patient is now screened into the new Phase III study in MND/ALS from Biogen Idec courtesy of Ireland.

Be sure to tune into Newtalk Radio tomorrow morning at approximately 9am when Prof. Orla Hardiman will talk about the trial and what it means for Irish patients.

http://www.newstalk.ie/programmes/all/breakfast/

Irish patient is the 1st in Europe to be fully enrolled into MND drug trial

Catherine Lynch — Tue, 07 Jun 2011 09:03:50 +0100

Check out page 3 of today's Health Supplement - Irish Times. The Empower study gets a write up.

http://www.irishtimes.com/newspaper/health/2011/0607/1224298495625.html

Prime Time

Catherine Lynch — Wed, 25 May 2011 19:37:33 +0100

Tune into RTE 1 next Monday 30th May at 9.30pm for A Prime Time special on the impact of health cuts, featuring interviews with Professor Orla Hardiman, Consultant Neurologist, and Anne Winslow, Chair of NAI. The interviews will also include input from people with neurological conditions.

9th Meeting of the European Network for the Cure of Amyotrophic Lateral Sclerosisin Hannover, ...

Catherine Lynch — Mon, 16 May 2011 20:46:30 +0100

Representatives from the Irish Motor Neurone Disease Research Team recently attened the 9th Meeting of the European Network for the Cure of Amyotrophic Lateral Sclerosis in Hannover, Germany.
Some presentations from the group can be viewed via th elink
http://www.mnd.ie/presentations-from-the-group

Increasing awareness of MND research

Catherine Lynch — Fri, 01 Apr 2011 10:21:43 +0100

RMN aims to increase awareness of MND research. RMN will feature on the home page of rip.ie for the month of April. Rip.ie is a service provider giving practical information on end of life matters in Ireland. Between 25,000 and 30,000 people use RIP.ie every day - this translates to over 750, 000 visits each month.

Charities introduce code to boost financial transparency

Catherine Lynch — Mon, 14 Mar 2011 15:55:21 +0100

The need to maintain transparency within the charity sector makes the front page of todays Irish Times. RMN aims to maintain continued full financial transpareny in keeping with the new charity code of practice.

All governance documents can be viewed via http://www.mnd.ie/donations

Full article can be viewed via http://www.irishtimes.com/newspaper/frontpage/2011/0314/1224292064603.html

A Celebration of Cheltenham Charity night in aid of Research Motor Neurone

Catherine Lynch — Wed, 09 Mar 2011 18:06:21 +0100

Ladbrokes in partnership with Irishracing.com hosted a Celebration of Cheltenham charity night in aid of Research Motor Neurone.
Photographs from the night can be viewed via our gallery section
http://www.mnd.ie/gallery/a-celebration-of-cheltenham

Start date Euro-MOTOR is confirmed

Catherine Lynch — Mon, 07 Mar 2011 10:44:11 +0100

The European Commission confirmed that the Euro-Motor project will offically begin on: 1February 2011.

An initiation meeting took place in Utrecht, Holland on March 3-4 where the aims and objectives for each arm of the project were discussed.
More information about the project can be viewed via http://www.euromotorproject.eu/

Up Coming Neuroscience Symposium

Catherine Lynch — Thu, 24 Feb 2011 17:39:50 +0100

The Society of Neuroscience of the Royal College of Surgeons in Ireland will host their 1st Neuroscience Symposium in the Albert Theatre, RCSI, St. Stephen's Green on Thursday, March 10th, 2011.
Professor Orla Hardiman, will give a talk on "The Genetic Epidemiology of ALS/MND - Lessons from the Irish Register."