| Increased Awareness & Family resouces |
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I started the MND Clinic at Beaumont Hospital in 1994. The clinic began in collaboration with the Irish Motor Neurone Disease Association, and was originally staffed by myself and Bernie Corr, Clinical Nurse Specialist in MND. Since then, the clinic has grown in size. We now have specialists in Physiotherapy, Occupational Therapy, Speech and Language Therapy and Nutrition, and have access to Respiratory Medicine and Palliative Care services. The clinic takes place on the second, fourth and fifth Thursdays of the month, starting at 11.30 and running until around 8.00pm. We are recognized both nationally and internationally as the National Centre for MND in Ireland. I am currently Secretary/Treasurer of the World Federation of Neurology Research Group on MND, the editor-in-chief of the specialist journal Amyotrophic Lateral Sclerosis, and a member of the Steering Group of the European ALS Consortium and the European Epidemiology Group for ALS/MND (EURALS). We have close connections with the North American ALS Consortium (NEALS), which designs and conducts clinical trials. Our international connections provide us with details of all of the new developments in ALS/MND, and allow us to tender for clinical trials as they become available. Anybody with MND is welcome to attend the clinic, once we receive a referral from a general practitioner. We are delighted to see people for a second opinion if the person with MND, their consultant and / or their general practitioner requests this. And as we appreciate that travel to the clinic can be arduous for those living outside of Dublin, we frequently co-manage people with their local neurologists. We also provide home visits by our Specialist Nurse (Bernie Corr) and or Research Fellows, all of whom are carefully chosen experienced doctors with a special interest in MND, a warm and empathic personality, and an understanding of the importance of maintaining the ethos of what we foster. |

